A Fibro Anthem, or My turn to Vent
Oh beautiful, a fibro flare,For amber waves of pain,
For purple mounting self-pity which goes against the grain!
O fibro-flare, o fibro-flare,
God damn this damned disease–
I’ve got it good, with spasm-hood, and pain in hips and knees! (with apologies to whoever wrote “America”)
I don’t talk about it much, but Kathy does not have the market cornered around here on fibromyelitis. Last night I woke up around one with the worst foot spasms ever–my left foot just sort of clawed down and I reached down to uncurl it by hand, which was a mistake on several counts–one, I got back spasms from reaching down and two, when I got it straightened out, it just kept spasming upwards until my foot looked like one of those nutty Turkish slippers, you know, with the wierd toes pointing up. Usually, getting up and walking around helps, that just made my hip joints hurt more.
I went back to bed and thought about suicide, it hurt so bad, composed the note (“Fuck this fibro, I’m outta here, see you later”), but then thought it through. I’d have to get out of bed again, my gun is way back in the trailer where it’s really cold, I’d have to go outside (if I made a big mess in the trailer, Kathy would track me down somehow and really give me hell), so I gave it up as a bad job.
Woke up this morning around four with weird twitches and electric-shock sensations, finally figured I may as well get up and move around. I planned to get up early anyway, since I have to get up tomorrow at five or so to do a show/sale. That was a boon to Kathy, she was able to stretch out and get more comfy–her fibro has been REALLY bad lately.
I can’t quantify it, but I do know I have an endorphin deficiency and seem to be more sensitive to pain then she is. Or maybe I’m just more of a wimp. She often accuses me of hollering before I’m hurt. Anyway, the pain is hard to describe. Imagine getting hit in the knee with a ball-peen hammer, or getting whacked in the small of the back with a sawed-off pool cue, or if you’re a runner, imagine shin splints from hell. Better yet, don’t think about it.
Even worse than the pain is knowing you can’t do a darn thing about it, except ride it out. Some fibro-folks do a lot of pain meds, but that isn’t a viable option for us, for several reasons. I hate feeling helpless in any sense, and being in a body that is doing odd things that hurt–well, remember Evil Dead II? Sometimes I feel like cutting a foot or something off, just so the damn thing will stop turning on me.
Knowing I probably brought a lot of this on myself doesn’t help. As I understand it, physical trauma can underlie a lot of fibro stuff, and I got a lot of that through drunken escapades like repeatedly falling down stairs or off of ladders, totalling cars (okay, it was just one, but it WAS a Porsche), dumb stuff like that.
And we got a bunch of new snow overnight, so I’ll be clearing the driveway. Ideally, Kathy’s adult son Doug would do all this–I have a hernia and aren’t supposed to lift anything much heavier than my dick. But he does the roof, AND splits and hauls in the firewood and schleps the water and he isn’t in the best shape himself. (We have a sort of rueful in-joke around here, that all three of us could be dismantled and put back together into one well-functioning body.) Besides, I’m too macho (that is, stupid and vain and proud and pig-headed) not to want to do SOMETHING, even if I hurt myself. I can live with hurt, I just try to avoid inflicting permanent damage on myself. Besides, the new stuff is light and fluffy–which means you may have to shovel the same flake several times but at least you won’t break your darn back in the process.
And I have to get ready today for a show tomorrow, will be driving during can’t see and can’t see to Colony High near Palmer, a 140-mile or so trip. At least there will be students there to help me unload the car, but I’m taking along four card tables I have to set up and figure our how to display stuff on–Kathy usually does the hard part of this. We already decided I’d do this solo, she needs more time to recoop.
Even more fun–I broke the fan switch on the heater–again– so I kind of don’t have a heater or defroster Doug said he’s try to mickey mouse a deal by pulling the guts of the switch out of the dash and rigging up a connection with alligator clips. I know it can be done, the mechanic did it as a stop-gap while I was cannabalizing my parts car for a new used switch (which–duh–was just as poorly designed as the first one, which is why the damn thing broke in the first place), but I am not counting on it. Still,.I took off the frame and removed the control panel cover, and undid the phillips screws holding the thing in place. He has the hard part, teasing the thing out through a hole in the dash somehow. He has better eyesight and coordination that I do, so it may work out. I just hope he doesn’t hurt himself or break anything major, or short out the electrical system in the process. We’ll see. Anyway, I know that the windshield will clear in a few miles from the force of outside air blowing in, and I’m sort of used to driving blind.
More on this later. Time to edit this puppy, post it and get some more coffee.
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