October 6, 2005
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A Few Words About that Damned Disease
SuSu has posted often, and movingly, about her challenges dealing with myalgic encephalomyelopathy/chronic fatigue immunodysfunction syndrome–aka fibro, aka that “damned disease.” Well, it’s my turn. I have the same thing only not so severely, and it has been a great blessing–otherwise, I would have no sympathy for her. Evidently, when God was handing out sympathy and empathy, I had gone out for a beer. Usually, it is no problem, except for the odd late-night excruciating muscle spasms, the rare brain-fog, or the driving alone late night blurred vision thing. Today, I have the cfis thing going in a big way.
Yesterday was real busy–I had a dental appointment, which meant driving 150 miles or so to the clinic and back. In the process I delivered a bunch of food and stuff to SuSu and son, picked up a bunch of stuff–including my winter tires, which meant I had to take a whole bunch of my merchandise out of the back of the car to make room for them. On the way home, I dropped off some books for her at the local library, then went way out of my way to get a Water-pik, recommended by the hygienist. I got home after seven, tired and wired. Finally went down well after one–after dealing with a bunch of mail and whlesale catalogs and cats–got up early this morning to go into town to get the winter tires put on, so I could put the stuff back in the car.
Thing is, with this disease, you really should get as much rest and sleep as you can, and I tend to sleep fitfully and wake up six or eight times a night anyway. So today, I am running on two or three fewer hours of sleep than usual, and boy, do I feel it. Like old Bilbo Baggins, after running around forever with the Ring, I feel “thin and stretched.” Slightly feverish, a tad out of it. Excess lactic acid burning in my legs. I used to feel this way regularly, after a night of hard drinking and drugging and poor nutrition generally. Now that I am living a saner, less self-destructive life, I usually feel okay physically.
Luckily, I am pretty much done with everything I have to do today. I may open my stand when I get home, I dunno, the weather looks iffy and I have a lot of muscle aches, and the idea of putting all four of my folding tables back into the car has scant appeal. I HAVE to open up tomorrow, weather permitting, since I had made a commitment to do so.
This integrity thing is sorta new to me–I like it.
Saturday and Sunday I will be working a gun show in Eagle River–anything unusual happens, you will read about it here next week. Luckily, business was negligible last year, so there is nothing to live up to, and I am learning not to have expectations anyway.
Comments (4)
I hope you’ll have a restful night tonight and get some energy stored up for your weekend. I don’t have all the reasons that you do for my symptoms today, but I’ve got the symptoms. About every third word I’ve typed here has had to be corrected. Take care.
Is this damned disease more prone to alcoholics who quit? Reason I’m asking is that you are now the sixth person I’ve run into who developed all those symptoms after they quit drinking. Or were they always present, and we just thought they were part of the hangover? Integrity is good, I like that word. It’s been embedded in my brain for the last 20 years … our company makes sure of that!
Good luck at the Gun Show. If you Sell anything and Buy nothing, you will be Okay! Luv ya, drink plenty of fluids and get some rest, you Sweet Old GreyFox. (or as the markster would say: GreySox … member that? snortle.)
ps on the phone thing, I think it has something with being on the internet at the same time. I dunno…..cuz it was strange the phone rang at all now that I think about it. Lost In Space……CyberSpace……The 2nd to the Last Final Frontier?
Been a while
Sell lots at the show.. and heres hoping you feel better can’t say soon because that doesn’t seem to be something that you can get over.. just take it easy and rest as you can.
Bright Beautiful Blessings Chel
I haven’t read this yet, will come back later but did you know that when you put “myalgic encephalomyelopathy/chronic fatigue immunodysfunction syndrome” into google the first two things that come up are blog entries of Kathy’s?